For bubbly grandmother Susan Eager spending time with her family, shopping trips and regular visits to the cafe were a way of life.
But after being diagnosed with a rare illness that causes the 60-year-old to have up to 30 violent seizures a day she is often too afraid to leave her home.
Susan was diagnosed with Non-Epileptic Attack Disorder (NEAD) in May, after months of tests and hospital appointments - a condition that affects around 10,000 to 15,000 people in the UK.
People with NEAD can recover and lead a normal life but in some cases non-epileptic attacks become a disabling long-term problem that is difficult to treat and manage.
Since being diagnosed Susan’s heartbroken family have seen her plagued by seizures that have affected her speech, memory and movement.
Susan has been known to have up to 30 seizures a day with each one lasting anywhere from two minutes to four hours at a time.
Susan, of Millfield Road, Thorne, has had seizures whilst walking upstairs, in the bath and whilst out shopping and is becoming isolated as she is scared to leave the house.
Susan’s daughter Teresa Carter is speaking out on behalf of her mother in the hope of finding others who have the same condition in the area in a bid to set up a support group.
“It has changed her life, she doesn’t like to go anywhere as she doesn’t want to be out in case it happens in front of people.
“She doesn’t want to stop her life and tries to carry on but she is scared. “She even worries about going to see my sister in case she has a seizure in front of Sophie her granddaughter because she’s only four and she doesn’t want it to scare her.
“Before this all started my mum was quite outgoing and was a bubbly person. She used to love going into town and walking round the shops and going to the cafe but now she worries about even leaving the house.”
The family say medics have struggled to find a solution as so little is known about the condition.
Susan’s memory, speech and writing ability have also been compromised since her diagnosis meaning she can no longer even make a cup of tea by herself.
“She’s fed up with it and just wants it to stop so she can carry on with her life. We are really keen to find anyone else in the area who has the condition so we can talk to them. We feel helpless because so little is known about the condition and there’s no awareness out there. We feel like if we could find others in the area with the same illness we could set up a group so people can share their stories and get help and know they’re not alone, at the minute my mum just feels like she’s the only one as we don’t know of anyone else in the are. Even if it was just so my mum can talk to someone who is going through the same thing it would help.”
Teresa is urging anyone who with the condition in the area to get in touch with her as she plans to set up a support group. Contact Teresa on 07535 250655