Mum contunues her drive to raise awareness of daughter’s rare condition

Sponsored walkers at Doncaster Royal Infirmary.  Picture: Tony Saxton
Sponsored walkers at Doncaster Royal Infirmary. Picture: Tony Saxton

A mum has spoken of the dramatic day specialist medical teams scrambled to save her daughter’s life when her body started to break down during a seizure.

Amelia Barratt started burning up while watching television at home and was taken to Doncaster Royal Infirmary where she endured a two-hour fit.

Mum Caroline told of the family’s ‘living nightmare’ as time ticked by and doctors decided the only way to save the frail five-year-old would be to paralyse her body and put her on a special ventilator.

However, the equipment was not available at the DRI and she had to be transferred to Sheffield Children’s Hospital in an ambulance specially adapted to treat critically-ill youngsters.

The mobile medical team kept her alive on an infant’s ventilator until she was taken to the intensive care unit in Sheffield, where she spent four days recovering.

Mrs Barratt, aged 36, has now organised a sponsored walk to raise money for the teams that saved her daughter’s life.

The teacher, of Brimham Close, Kirk Sandall, said: “It was like a living nightmare.

“Her temperature went through the roof and she looked awful.

“As every minute went by when she was in the accident and emergency department I really thought we would lose her.

“We were terrified she might die.

“But the medics on that day were incredible.

“They saved her life and we will never forget what they have done for us.”

Amelia was born three months prematurely, weighing just 1lb 7oz, and as a result suffers intermittent convulsions.

She was tube fed and received specialist round-the-clock care in the first few months of her life at DRI’s neo-natal unit.

The seizure, which hospitalised her last November, was the most severe she has suffered, but the Edenthorpe Canon Popham School pupil has since made a recovery.

The brave youngster is hoping to join her mum, firefighter dad Simeon, 37, and about 150 other families for the last stretch of a 20-mile sponsored walk from Sheffield Children’s Hospital to DRI on May 27.

Funds will be split between the Embrace Transportation Unit, which transferred Amelia between hospitals, and Doncaster’s neo-natal team.

Mrs Barratt said: “We have been through so much, but Amelia is so brave.

“She keeps battling on.

“It will be nice to see the parents and children get together for the walk.

“We have given it the title Over the Rainbow because there was a rainbow in the sky when Amelia was born.

“I put details on Facebook and the response has been amazing.

“Anyone who wants to support us, please get in touch.”

The event has already raised about £2,000 towards a target of £6,000.

Anyone that wishes to give help in the way of sponsorship to this worthy cause, is thinking about taking part in the sponsored walk or who would like more information should visit the website