Doncaster Council signs motor neurone disease charter in bid to tackle discrimination

(Left to right) Julie Compton and Valerie Wood from the MND Association alongside Coun Rachael Blake, cabinet member for adult social care.
(Left to right) Julie Compton and Valerie Wood from the MND Association alongside Coun Rachael Blake, cabinet member for adult social care.

Doncaster Council has signed the motor neurone disease charter in a bid to recognise the importance of supporting borough residents affected by the fatal disease.

Developed by the Motor Neurone Disease Association, the charter is a statement of the respect, care and support that people living with MND and their carers deserve and should expect.

MND is a fatal, rapidly progressing disease that affects the brain and spinal cord. It can affect up to 5,000 adults at any one time and on average six people are diagnosed every day, with the same number losing their lives each and every day.

Doncaster resident, Valerie Wood has cared for her husband who was diagnosed with MND in 2012. She said: “It is excellent that Doncaster Council have taken this important step of signing the charter.

"MND has a huge impact on both the person affected and their family/carers and it is vital that work continues to diagnose the condition as soon as possible.”

The charter includes; the right to an early diagnosis and information, access quality care and treatments, to be treated as individuals with dignity and respect, the right to maximise their quality of life and carers of people with MND have the right to be valued, respected, listened to and supported.

Coun Rachael Blake, Doncaster Council cabinet member for adult social care, signed the charter on behalf of the local authority.

She said: “It is vital that all our residents who have MND and their families know about the support and services that are available in Doncaster.

"By signing this charter, Doncaster Council and the wider partners in the Doncaster Growing Together Partnership are demonstrating our support to ensure people living with this devastating disease can maximise their quality of life, by having the right information, support and care services and treated as individuals with dignity and respect.”