The family of a toddler with a terminal muscle- wasting condition have launched a fundraising mission to help him live life to the full.
Two-year-old Olly has Duchenne Muscular Dystrophy, an incurable genetic condition which means even simple tasks like sitting up and standing are a battle for him. The life expectancy for someone with the condition, that also affects the heart, is mid-to-late-20s but Olly’s family have vowed to ensure the youngster’s life is packed with happy memories. Mum Jemma said: “There’s going to be a split with the money and 60 per cent will go to Olly so we can give him and us fond, happy memories.
“We are hoping to take him away to Disneyland whilst he can still walk and we want to be able to afford the best possible care and equipment as he grows up.
“The remaining 40 per cent will go to The Muscular Dystrophy Campaign to fund research into potential treatments and cures for the condition to help Olly and other families in our position.
“We want to say thank you to everyone that has supported us so far. In the first few weeks of setting up Olly’s Fund we had £300 – it’s overwhelming.”
Olly was diagnosed in January after Jemma and husband Karl noticed Olly was having trouble crawling and sitting up.
Jemma, 30, of Church Meadow Road, Rossington, said: “It was devastating, it still doesn’t feel real now.
“We noticed something was wrong when Olly wasn’t crawling or sitting up we just thought he was a bit slower in his development so it was a massive shock to find out, I’d never even heard of the condition before.
“At the minute he can walk but if he falls he can’t get back up on his own, he can’t stand up from a sitting position or climb so we have to help him a lot but eventually he will need a wheelchair.”
But the plucky toddler does not let the condition hold him back and he continues to capture the hearts of everyone he meets.
“He’s absolutely brilliant he’s really chatty and has an amazing sense of humour, he never let’s his condition hold him back, I suppose he’s never really known any different.
“He’s always laughing and smiling, he’s such a cutie that everyone falls in love with him,” said Jemma.
A series of fundraising events are being planned for the youngster who attends Bright Sparks nursery in Rossington.
Staff at His & Hers Barbers in Colonnades held a fundraising event over the weekend dressing up as Disney characters and donating all their tips to Olly’s Fund.
A coffee morning for the fund will also take pace on Saturday April 18 at the Millstone in Tickhill from 10am to 12.
n To donate and find out more visit http://www.youcaring.com/family-fundraiser/olly-s-fund/303444